tag:blogger.com,1999:blog-2399329897798113338.post6882010409766655251..comments2023-12-05T18:51:57.333+00:00Comments on Tales of Life with Multiple Sclerosis: Time for an update, including Tysabri number 2Ameliahttp://www.blogger.com/profile/15005720150574964538noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2399329897798113338.post-87277342207602948012009-08-15T08:37:54.763+01:002009-08-15T08:37:54.763+01:00Hi Amelia!
I think about you often and am glad you...Hi Amelia!<br />I think about you often and am glad you wrote to me. I have wondered how the Tysabri was going for you. Apparently not the greatest. Question is...Are the side affects from the Tysabri or the MS flaring up? Are you going to be able to keep doing them? I hope they figure something out and get you feeling better real soon.Living Day to Day with Multiple Sclerosishttps://www.blogger.com/profile/16919357938675061411noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-18634303557405568082009-08-01T17:06:43.001+01:002009-08-01T17:06:43.001+01:00I'm sorry you're having trouble with your ...I'm sorry you're having trouble with your hand. I hope it goes away or improves soon. <br /><br />I have trouble with small veins too. Someone one told me to drink water before ... they've also done the hot compresses. <br /><br />I've only had two steroid iv treatments ... one for 5 days the other for 3. They told me I needed to get pic put in too ... my veins shut down and they run out of places.<br /><br />After my coma, some of my good ones are not usable ... mean top of the hand ... which as we all know is bad <br /><br />Hope you feel better soonJChttps://www.blogger.com/profile/13434534658681194289noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-44500297896965585092009-08-01T15:07:47.930+01:002009-08-01T15:07:47.930+01:00Hi trouble, can empathise with the hand problem th...Hi trouble, can empathise with the hand problem that was how my MS started, I couldn't hold a cup or cutlery and actually collared a passing OT ("Oi, you, can I have a word?")in hospital who got me some extra large holders to put it in. Good job he heard me as I couldn't have chased him as my legs didn't work at the time either (amongst other things ;¬0. I had trouble with things like pegging out washing and still can't do things needing fine dexterity - hence the loss of my career, but you either adapt or it gets better not sure which. My hands feel really hot sometimes and running them under cold water helps.<br />Have you tried a TENS machine for pain? for the next Tysabri suggest using a hot compress over intended veins (maybe if they have you waiting for hours again - Paper towel or flannel soaked in hot water would do, or one of those little hand warmer things fishermen use possibly.<br />Oh, I've waffled again, sorry but hopefully some of it is useful!<br />Jen -x-x-x-Big Jenhttp://www.bigjen.vivit.comnoreply@blogger.com