tag:blogger.com,1999:blog-2399329897798113338.comments2023-12-05T18:51:57.333+00:00Tales of Life with Multiple SclerosisAmeliahttp://www.blogger.com/profile/15005720150574964538noreply@blogger.comBlogger456125tag:blogger.com,1999:blog-2399329897798113338.post-20858469811128345032017-05-31T00:47:02.485+01:002017-05-31T00:47:02.485+01:00Hi Gina,
At the moment, as I write this, yes they...Hi Gina, <br />At the moment, as I write this, yes they do still work for me. I have finally got myself onto a regular planned list so I have it every eight to ten weeks now. This makes a big difference to me because after that the Lidocaine tends to wear off and my pain increases quite a bit. The infusion doesn't get rid of my pain but it does dampen it down and makes it more manageable........it's the first treatment that has made any kind of difference to me so long may it continue! <br />I hope you get some answers soon, feel free to contact me any time, Best wishes Amelia XxXxX <br />tattyteddy73@btinternet.comAmeliahttps://www.blogger.com/profile/15005720150574964538noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-83118110331538097712017-05-28T23:26:06.979+01:002017-05-28T23:26:06.979+01:00Hi Amelia,
I am wondering if you are still gettin...Hi Amelia,<br /><br />I am wondering if you are still getting the lidocaine infusions? I have MS like symptoms but yet my MRI shows no lesions. I had tried the infusions and was having them done once a month. After 4 months of getting relief from my pain, it just stopped working for no reason at all. So I was just curious if they were still working for you... <br /><br />Thanks in advance<br />Gina Anonymoushttps://www.blogger.com/profile/02075311006359903223noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-70833686753218110522017-01-22T06:59:59.448+00:002017-01-22T06:59:59.448+00:00thank you for sharing! I am a nurse passionate in ...thank you for sharing! I am a nurse passionate in making a difference to people living with physical disabilities. Bowel care is not spoken about however it is one of the most searched topics on the internet for this population! Though I'm in Australia i thought this may assist anyone reading your blog and wondering how they too can make change. Please feel free to contact me my details are within the link below ! <br />http://www.holisticnursingsolutions.com.au/single-post/2017/01/22/PeristeenAmynoreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-11392369438803467562017-01-07T23:08:02.355+00:002017-01-07T23:08:02.355+00:00How are you feeling? I've been on Tysabri for ...How are you feeling? I've been on Tysabri for almost 3 years jcv+ entire time.Alexandra C.https://www.blogger.com/profile/07809807049714449065noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-12728847814607159332017-01-07T06:38:43.314+00:002017-01-07T06:38:43.314+00:00Thanks for sharing this helpful post.....!
http:/...Thanks for sharing this helpful post.....!<br /><br />http://www.herbs-solutions-by-nature.com/Blepharitis.phpMargla Clerkhttps://www.blogger.com/profile/00662500293430477597noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-1272023546049568412016-09-19T14:47:44.463+01:002016-09-19T14:47:44.463+01:00I found out after breaking my leg (which may have ...I found out after breaking my leg (which may have been caused by spasticity) that just a small dose of Percocet or oxycodone (30 mg daily of oxycodone) completely eliminates spasticity and makes life somewhat bearable, without causing any noticeable side effects. During my two-week hospital stay, I had no way to use cannabis, which I had to use every day for probably a year and a half before breaking my leg. I didn't miss it. Weed may help, but oxycodone makes weed essentially unnecessary.<br /><br />Additionally, unlike weed, the small dose of oxycodone doesn't get me high. (I don't want to be high, because being high makes life much more difficult than it already is.) Baclofen made me high, useless, and miserable. In fact, I'm still miserable four days after taking my most recent dose of Baclofen. It also made me piss my pants twice (and more) within a couple hours, which doesn't happen when I'm not on Baclofen. I will never take Baclofen, or any muscle relaxer, again; even if I never receive another script for oxycodone.<br /><br />My neurologist/doctors are supposed to help me. Oxycodone helps me. They refuse to prescribe it, even though just about all the literature I have read says it helps and doesn't lead to addiction in MS patients. Which I already knew.<br /><br />Most doctors are clueless, and it may kill me. Ryan M. Powellhttps://www.blogger.com/profile/05277089504982373125noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-33528096773579849742016-08-11T09:42:23.107+01:002016-08-11T09:42:23.107+01:00What an interesting car story! I am glad you were ...What an interesting <a href="http://fiestanissan.tumblr.com/post/145643511980/the-2017-nissan-armada-from-dealerships-serving" rel="nofollow">car</a> story! I am glad you were able to use the Motability plan for getting a car, that must have been great. And it is good someone was able to help you with the difficulties of driving. I have my fingers crossed that everything will work out in the future and that you will enjoy your new car!Newtonhttps://www.blogger.com/profile/04787854006839671839noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-76382702060487318762016-07-25T19:27:58.691+01:002016-07-25T19:27:58.691+01:00Hi- I am an MSer who has recently stopped Tysabri ...Hi- I am an MSer who has recently stopped Tysabri and would love to take a few months off. You were so kind to share your story the first time around, that I wanted to see if you could share any update. How long did you stay off of drug? Thanks!Anonymoushttps://www.blogger.com/profile/15560273002035984019noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-78280304520368590322016-07-17T15:33:42.304+01:002016-07-17T15:33:42.304+01:00If your neurologist thinks you need Lemtrada then ...If your neurologist thinks you need Lemtrada then your MS is riskier Han any potential problems from Lemtrada.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-69647792592515366562016-07-14T01:08:14.508+01:002016-07-14T01:08:14.508+01:00facebook group is the best.facebook group is the best.ChicagoAnonnoreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-29655111090643479002016-07-13T09:58:34.261+01:002016-07-13T09:58:34.261+01:00Hi
I can help with the Lemtrada experience sharing...Hi<br />I can help with the Lemtrada experience sharing if you would like me to, I'm happy to share contact details either phone / Skype / facetime / email etc if you would like. <br />My experience is all publicly available on my blog for the last year and a half at www.tracyslemtradajourney.co.uk.<br />I will email you so you have direct contact details for me xxTracyhttps://www.blogger.com/profile/15724614833567367625noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-27116016431391445742016-07-06T07:25:22.638+01:002016-07-06T07:25:22.638+01:00Many feel and know so called Multiple Sclerosis is...Many feel and know so called Multiple Sclerosis is a mechanical issue NO drug treatment or therapy can solely rectify! #CCSVI<br />Chronic Cerebrospinal Venous Insufficiency (CCSVI) is a treatable congenital recognized Medical Condition, Scientifically established to have Significant role in MS, and play part 43 other so called Neurological afflictions !<br />#CCSVI Venous Hypertension>microbleedings>iron<br />>inflammation>free radicals<br />>neurodegeneration #multiplesclerosis<br /><br />Diagnosed with so called Multiple Sclerosis ?<br /> With Venoplasty treat recognized Medical Condition CCSVI Symptoms of MS often Ease/DISAPPEAR!Anonymoushttps://www.blogger.com/profile/07805658218181204710noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-60006700873429840352016-06-12T14:57:48.391+01:002016-06-12T14:57:48.391+01:00It was lovely to see you and I'm so glad you d...It was lovely to see you and I'm so glad you decided to go. I was also nervous - I guess we all were - but the years melted away and a lot of ghosts were put to bed that day for all of us. As a fellow student who ended up in the arts - despite very little encouragement - I'm glad we got the chance to do that! Lovely post xxx btw Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-82361116973306796792016-06-05T14:15:10.048+01:002016-06-05T14:15:10.048+01:00This comment has been hidden from the blog.Ameliahttps://www.blogger.com/profile/15005720150574964538noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-87757954477236326082016-06-04T17:57:28.026+01:002016-06-04T17:57:28.026+01:00This comment has been hidden from the blog.Nicola Tapleynoreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-81784139560039897762016-05-24T13:58:09.326+01:002016-05-24T13:58:09.326+01:00Arthritis is very common but is not well understoo...<br />Arthritis is very common but is not well understood. Actually, “arthritis” is not a single disease; it is an informal way of <br /><br />referring to joint pain or joint disease. It is most common among women and occurs more frequently as people get older. So <br /><br />we advise to you the best <a href="http://homeremedies9.com/common-remedies/home-remedies-a/arthritis-home-remedies/" rel="nofollow"> Home <br /><br />Remedies For Arthritis </a> which is perfect for you. It is natural and there is no side effects.Anonymoushttps://www.blogger.com/profile/13657763180691229567noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-79283656324347940142016-04-15T18:29:00.191+01:002016-04-15T18:29:00.191+01:00I have never had a relapse, my MS is always the sa...I have never had a relapse, my MS is always the same, and,balance issues, memory problems, losing things.Anonymoushttps://www.blogger.com/profile/15095472408765415841noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-2055461684664358742016-03-25T16:20:17.887+00:002016-03-25T16:20:17.887+00:00I too have been diagnosed with MS. I, however, use...I too have been diagnosed with MS. I, however, use marijuana for my symptoms. No side effects, no deaths.Anonymoushttps://www.blogger.com/profile/00137482999756905288noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-90814131147304688322015-10-22T09:00:07.738+01:002015-10-22T09:00:07.738+01:00Herbal Formulas for pain reliefonline shopping pla...<a href="http://www.herbalsoakandsoothe.com" rel="nofollow">Herbal Formulas for pain relief</a>online shopping place to find all of the Herbal pain relief treatment products and information that will relieve you of sore painful hands. <br />Naveen Sonihttps://www.blogger.com/profile/12554172818447292470noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-50662854287656864282015-10-22T08:57:16.058+01:002015-10-22T08:57:16.058+01:00treatment for painful handsHerbal Soak and Soothe:...<a href="http://www.herbalsoakandsoothe.com" rel="nofollow">treatment for painful hands</a>Herbal Soak and Soothe: online shopping place to find all of the Herbal pain relief treatment products and information that will relieve you of sore painful hands. <br />Naveen Sonihttps://www.blogger.com/profile/12554172818447292470noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-21197776127662674012015-09-25T11:33:25.234+01:002015-09-25T11:33:25.234+01:00your blog Provides things are helps me to find my ...your blog Provides things are helps me to find my detail. your blog is very good for me please keep it up.I like it<br />Visit :- <a href="http://tkftiling.co.uk/" rel="nofollow">Wet Room Installation</a><br />andersonhttps://www.blogger.com/profile/14625287413297458232noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-69443083951365883722015-09-25T11:32:35.612+01:002015-09-25T11:32:35.612+01:00your blog Provides things are helps me to find my ...your blog Provides things are helps me to find my detail. your blog is very good for me please keep it up.I like it<br />Visit :- <a href="http://tkftiling.co.uk/" rel="nofollow">Wet Room Installation</a><br />andersonhttps://www.blogger.com/profile/14625287413297458232noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-83801826011881428642015-08-18T13:23:06.578+01:002015-08-18T13:23:06.578+01:00Thank you for writing this report. We will be doin...Thank you for writing this report. We will be doing the shorter Droitwich Ring, on a 58' Black Prince boat from Stoke Prior as well. Your report is very helpful for our planning. I am leaning toward going anti-clockwise and your report confirms that bias :)Joe Chinhttps://www.blogger.com/profile/03478182017013007576noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-38718510517661393782015-06-04T20:21:53.990+01:002015-06-04T20:21:53.990+01:00Thank you for the blog. I enjoyed your writing! Yo...Thank you for the blog. I enjoyed your writing! You have a lot of the same issues I do. It was a good way of figuring things out for me. Take care and I hope your meds kick in soon!!!Anonymoushttps://www.blogger.com/profile/03512093794026859413noreply@blogger.comtag:blogger.com,1999:blog-2399329897798113338.post-76431120258603951742015-06-04T13:00:55.141+01:002015-06-04T13:00:55.141+01:00Thank you for the insight into Tecfidera - it is g...Thank you for the insight into Tecfidera - it is good to hear from somebody with first hand experience rather than the official party line from my Neuro (!)The Mrs Nat Ghttps://www.blogger.com/profile/09996641831067846190noreply@blogger.com