Monday, 7 December 2009
"Open & Honest"
Hey look at this, two posts in as many days!!!
I want to ask for some advice. I probably already know the answer, but it doesn't hurt to ask anyway!
I am really struggling with a strange sensation all over my body. It feels like all my nerve endings are flickering. It is so hard to explain, but it feels to me like I have put my hand in an electric socket and all the nerves have gone haywire.
It is a sensation that I have had on the odd occasion over the years, but generally it would go away once I went to sleep and I would only feel it on the odd night. At the moment though, I seem to be feeling it night after night. I thought, a couple of weeks ago, that it might be subsiding, as it was getting less frequent but now it is doing it almost every night again.
I went to my GP, but she said she didn't really know where to go with it now. I have been quite unlucky with the pattern my MS has gone. I have experienced pain right from the start and it has been really hard to manage. My GP admits that I probably know more about the condition than she does! So she advised me to go back to my MS team, the MS nurses etc, and see what they suggest. My concern, is, that I told one of the nurses about this flickering of my nerves, last time I went to have my Tysabri infusion. But because it was starting to subside, the nurse said that it should just go away now. I was a little downhearted because I was afraid it may return and it has, so now what do I do?
I know that I really need to phone one of the MS nurses, but I guess I know that they will say that there isn't much they can do or suggest, so, I'm thinking, what is the point of bothering them? I don't like making a nuisance of myself either.
I'm also struggling with a couple of other symptoms at the moment. Fatigue is hitting me quite hard but also, I am having trouble with my water works.
This is quite hard to talk about and it feels weird to be talking about it on my blog, but when I set out to do this blog, I said I would be open and honest. Unfortunately bladder problems can be a big issue for people with MS, so I'm not going to pretend mine don't exist.
The problems I am having, are, that I need to go much more frequently and when I need to go, that usually means right then. I haven't had any proper accidents, but there have been some near misses! It also doesn't feel as though I am emptying my bladder fully, when I do go.
I have been tested for infection but it has come back all clear, so I believe that this is being caused by the MS.
When I spoke to my GP, she said, that if the results were that there was no infection, then she would look at getting an ultra sound done, so that they can see if I am emptying my bladder or not. If not, she said there were things that could be done, but that we would cross that bridge when and if we come to it!
When I put these things together, I do wonder whether it equals a relapse, but I don't even want to go down that road!!
Am I burying my head in the sand.............maybe, but I never know when things are different and I need to tell someone or when things are just due to a change in the weather or something like that!
When you have symptoms, like pain, day in and day out, I believe that it impairs your judgement after a while.
On a lighter note, I had to post this photo, it had me in stitches!
It is of Kit Kat, our little baby girl. She had jumped into an empty box that I had put on top of our stove, and she looked really cute, so I decided to take a photo. I got a couple of her lying in the box, but then she sat up and just as I was taking the photo, she yawned - priceless eh?!!