Sunday, 10 January 2010

Snow & cold!

Hi everyone................I'm back!
I hope you have all had a really good Christmas and New Year. And I also hope that you have all recovered from the celebrations!
I am pleased to say that we had a lovely time. I managed through the week quite well, but of course, afterwards I had a bit of a fatigue crash! That's to be expected though........isn't it?!
Throughout the beginning of January, we have been experiencing very bad weather conditions. Very cold temperatures along with snow and ice.
I wanted to ask people whether the cold weather has been affecting any of your symptoms?
I have been struggling really badly with pain. And my hands have been especially bad.
In fact, last night I was awake at about 4am with severe pain in my hands. I tried to go back to sleep but that didn't work, so I got up and went downstairs, to try and distract myself with the television. I just didn't know what I could or should do to help myself.
I felt really bad for Martin. He desperately wanted to know how he could help me, but I didn't even know how to help myself, let alone tell someone else what to do. It's horrible because I put myself in his shoes and I would be so frustrated and upset at seeing someone I love going through this.
I have Tysabri infusion number eight on Tuesday, that is, as long as we can get to the hospital! I am definitely going to speak to the nurse about these heightened symptoms and what I can do to help the situation.
It's a New Year and a new start for us, in our household. We have decided that it is about time to change our eating habits and to try and have a healthier lifestyle!! I'll let you know how it goes, but so far so good. I have tried all sorts of diets etc in the past, but none have ever been long lasting. So that is why we are looking at a lifestyle change, so that it can be something more permanent! I have to admit that I feel really good about it this time. My head seems to be in the right place for doing this. I have tried in the past, when my head hasn't been right and it just doesn't work. You have to want to do it and I am pleased to say that we both want to, which makes a big difference. I am hoping that I lose some weight. I'm not sure what affect the medications will have but I am not going to let that stop me! Also, when I have lost weight in the past, I have always been able to exercise. That is an issue now though, due to the lack of mobility. We have a Nintendo Wii though and I plan to use that to try and get a bit of movement. I will enjoy beating Martin at Table tennis at the same time!!
It is now 2010, so I can finally say that we are doing our concert this year!! We are supposed to have our first rehearsal today, but we are waiting to see what happens with the snow, as to whether we will be able to have the rehearsal! Fingers crossed though!
Anyway, it's good to be back, I hope everyone is doing well and I look forward to catching up with you all.


  1. Hello again Amelia. Yes cold can make your symptoms worst.For some people it's the heat for others the cold is the nightmare. The only thing you can do is to try warm up as much as you can to make things a bit easier but if you're like me with the heat, your body just know it's cold outside even if you're boiling in the house. Otherwise, there's not much things you can do... KEep warm and good luck for the next Tysabri infusion!


  2. Hi Amelia,
    Please have a look at my post this friday and pick up your Golden Paw Award for Barnaby and Kit Kat.

  3. amelia please check my blog.there is a tag and award for you on it. look for the MS tag.cant miss made it for love mort xx