Friday, 27 May 2011

MS Register!

This post is to tell you about the new MS register that the UK MS Society has set up.
It is a short - 3 question - survey to fill out that will enable the MS Society to collect data about who has MS and where abouts in the UK people with MS are. The idea behind it is to enable better knowledge which will allow better services to be provided.
If the powers that be know where people are and what services are needed in that area then people are more likely to be able to ask for those services knowing they have the correct statistics to back them up.
For too long now the standard saying was that there were 85,000 people in the UK with MS. I've been diagnosed now for over eight years and that figure has stayed the same. It can't be right.
But without a register for people to sign up to, no-one has been able to change that figure with any certainty. Hopefully this register will allow them to do that. I personally think we might be in for a shock, when the real figure is announced!!

The following is taken from the MS Society website

The Register could

  • Revolutionise the focus of MS research, opening new avenues to explore
  • Get more accessible and targeted clinical trials for people with MS
  • Get new and highly accurate evidence to present to government
  • Get more targeted funding and support for people with MS
  • Support future research into cause and cure

But the Register will only work if enough people with MS take part. You can be a part of the big picture, by putting MS on the map.

We urge everyone with MS to join us.

Find out more and join now at

So if you live in the UK and you have MS, please sign up to the register, it is really important and could help shape things in the future!



  1. Hi Amelia,
    The registry is a great idea.

  2. Hi Amelia,
    Please call by my blog and pick up your awards.
    I hope you enjoy passing them on as I have.
    Its a pleasure to visit you and read your posts.